We are going to visit my daughter and her husband. They live just outside of South Bend. My granddaughter is now a month and 6 days seizure free.
- bixll

That’s great news! I’m glad to hear that

I hope you have a great time catching up with them

That’s great news! I’m glad to hear that

I hope you have a great time catching up with them
- RickJames77

They just bought a new house. So, now we have our own mini suite. Getting spoiled in our old age.

We are going to visit my daughter and her husband. They live just outside of South Bend. My granddaughter is now a month and 6 days seizure free.
- bixll

Awesome news.

I guess the very expensive medicine is working huh?

Awesome news.

I guess the very expensive medicine is working huh?
- Scabeh

No Sir. After 9 days, it almost shut her kidneys down. Back on CBD, they get from 6 doctors in Florida, Fish oil once a day and Keppra.

Full spectrum CBD, Fish oil helps her body to use the CBD better, same as the small amount of THC. Being medication resistant, the Fish oil and the THC in the CBD allow her body absorb the CBD and it made a huge difference.

No Sir. After 9 days, it almost shut her kidneys down. Back on CBD, they get from 6 doctors in Florida, Fish oil once a day and Keppra.
- bixll

Holy crap.


Here's to hoping it keeps on working.

At least the financial toll on your daughter being removed is a good thing.

Holy crap.


Here's to hoping it keeps on working.

At least the financial toll on your daughter being removed is a good thing.
- Scabeh

The Hospital in Chicago has people and companies that sponsour, for situations like that. She had a sponsour in 3 hours... Who could afford a grand a day for just one of your medications.


She is a very happy, beautiful little girl, these days..

The Hospital in Chicago has people and companies that sponsour, for situations like that. She had a sponsour in 3 hours... Who could afford a grand a day for just one of your medications.


She is a very happy, beautiful little girl, these days..
- bixll

Poor dmnted, killed by posting about eating a hot dog on Hockeybuzz.
- Canada Cup

among other things.

He should have known better.
- bixll

it's the Kessel syndrome

so I heard on the radio the other day, "they experts" say that eating a hot dog shorten your life by 36 minutes

hot dog and fries is for lunch today
- dmnted

Since I used to smoke I find it hard to get scared by what hot dogs are gonna do to me. And since I don't even drink now, I gotta get to heaven somehow.

Indiana.
- bixll

Out of curiosity, do you have to quarantine when you get back? What are the rules for leaving the country these days...?

Fire Dubas.
Have a great day, you all.

Out of curiosity, do you have to quarantine when you get back? What are the rules for leaving the country these days...?
- joel878

2 vacc shots of the same variety, covid test within 3 days of your departures, each direction. With 2 vaccines you do not have to quarantine.

They just bought a new house. So, now we have our own mini suite. Getting spoiled in our old age.
- bixll

Great news on your granddaughter. Are they charging full rate on the suite or giving you a family discount?

The Hospital in Chicago has people and companies that sponsour, for situations like that. She had a sponsour in 3 hours... Who could afford a grand a day for just one of your medications.


She is a very happy, beautiful little girl, these days..
- bixll

Great news on your granddaughter. Are they charging full rate on the suite or giving you a family discount?
- Canada Cup

I get the family discount. We have to babysit non stop for 8 days to cover the cost of our stay. Great deal... She has an appointment at Mass General in Sept. Just in case something goes sideways. They were very interested in her case.

4 Million in her care to this point.... Worth every penny Blue Cross has.. LOL

I get the family discount. We have to babysit none stop for 8 days to cover the cost of our stay. Great deal... She has an appointment at Mass General in Sept. Just in case something goes sideways. They were very interested in her case.

4 Million in her care to this point.... Worth every penny Blue Cross has.. LOL
- bixll

- Symba007

2 brain surgeries will get you there, quick. Just the anesthesia for her first 12 hour surgery, was over $200k.


We would not wish what we went through with our granddaughter on our worst enemy... No joke, it was brutal. So proud of my daugther and her husband for getting through this, in one piece.

2 brain surgeries will get you there, quick. Just the anesthesia for her first 12 hour surgery, was over $200k.


We would not wish what we went through with our granddaughter on our worst enemy... No joke, it was brutal. So proud of my daugther and her husband for getting through this, in one piece.
- bixll

I can't even begin to imagine what it was like for your family.

2 brain surgeries will get you there, quick. Just the anesthesia for her first 12 hour surgery, was over $200k.


We would not wish what we went through with our granddaughter on our worst enemy... No joke, it was brutal. So proud of my daughter and her husband for getting through this, in one piece.
- bixll

damn, poor little girl having to go through so much at such a young age.

Yeah, kudos to your daughter and her husband, they must be exhausted but relieved that it is showing positive results so far.

I can't even begin to imagine what it was like for your family.
- PatC80

A few sleepless nights, to say the least.

You also find out who your friends really are.

2 vacc shots of the same variety, covid test within 3 days of your departures, each direction. With 2 vaccines you do not have to quarantine.
- bixll

👍

Thanks, enjoy your trip.

damn, poor little girl having to go through so much at such a young age.

Yeah, kudos to your daughter and her husband, they must be exhausted but relieved that it is showing positive results so far.
- Symba007

First surgery at 6 months old. Dividing her brain in 2. One of 3 doctors in the world that do this with laser, performed the surgery. Crazy stuff. Dr. Sandi Lam. My granddaughter was the patient of the year 2020 for Chicago Children's hospital.

damn, poor little girl having to go through so much at such a young age.

Yeah, kudos to your daughter and her husband, they must be exhausted but relieved that it is showing positive results so far.
- Symba007

Yup, that would break alot of people for sure.

They've all been very courageous no doubt.

Yup, that would break alot of people for sure.

They've all been very courageous no doubt.
- Scabeh

Yes, very proud. My daughter had just opened her Autism Center 3 months before her first surgery. Now is just about to open her second location. 13 employees.... Chip off her mothers block...